There are days in our home that seem like they will never end. The screaming, crying, meltdown fits. The never ending diaper changes. The fight over what food needs to be eaten. There are days that are long and push me to the realms of the mommy limit.
One afternoon this past week he came home from daycare and demanded his vegan ice cream. I simply stated "no you need sausages or sticks first" the next 15 minutes was slapping, picking, punching, slamming doors all while screaming over and over "I WANT ICE CREAM...I WANT ICE CREAM...." finally after what seemed like ages there was the smallest flicker and he came crawling up into my lap to be calmed down. "Me want sticks". (Sticks are slim jims) he got them and ate them and asked again for ice cream which at that point he got.
The diaper changes are soooo annoying. Is that too harsh? It would be different but if you ask him where pee and poop go he always replies "in duh potty". Great! Fantastic! Let's go to the potty. Brings on instantaneous stimming with his hands and him screaming "ME NO POTTY".
We didn't go see the Klinefelters specialist in May. At this point the autism is our main focus and trying to get his aba on a regular schedule has been a challenge in itself. We had an amazing lady Ms. Tammy who was an interim until they found a replacement. Since then we went through 2 more who simply cancelled constantly or just followed Dacotah around every visit. Last week I was ready to call it quits but went to the regional director and asked to be put on Ms. Tammy's wait list because she took the time to work with us instead of telling me I was doing everything right. "Obviously not!". So starting next week we have Ms. Tammy back and our first goal is finding out where his listening concept is presently so we know how to approach him on his level.
Dacotah also got accepted into the local pre-k at the local school. Honestly I was a nervous wreck. But his teacher Ms. Peak has already reached out and has been an answered prayer. She has ABA training under her belt along with having 2 years of nursing. (That part puts my mind at ease regarding lunchtime).
I am hopeful by his next IEP meeting we have more information that will continue giving him a great start.
Yesterday he was singing Jesus Loves Me without being prompted and it let me know he is going to be just fine. This child was never suppose to say more than 50 words. Just last year he barely said more than 1-2 words at a time. Now he will repeat himself 1000x until you let him know you heard him. But he has never given up. So even on the long days, the hard days, the neverending fighting days we will keep moving a step forward. Eventually we will get there.
