Friday a week ago through last Friday Dacotah was super sick with the flu. Normally it's not a big deal for his sister we give her some homeopathic remedies and her symptoms go away and she's fine, no fever, no fatigue, etc. Sadly for Dacotah we learned that would not be an option. Why? Because he refuses to take any kind of medicine by mouth. I have heard every suggestion in the book, I have tried every method I have heard and read about. Trust me been there done that. Unfortunately, by some ways unknown by me, he can spit it from out of the depths of his throat all over him, us, and anyone nearby. We have dealt with it ANY TIME he needs anything orally.
Unfortunately the only fever reducer that comes as a suppository is Tylenol. Against the flu it has about a 3 hour time span before Dacotah's temp started to raise again. The alternate would be Ibuprofen which is a oral medication. Reread paragraph one if you want to know how that went. So long story short he maintained a temp of 102 for 5 out of 7 days. The other two days his temp was 103-104.1 We kept him in nothing but a pull-up, and showers/baths multiple times throughout the night.
Giving medicine is a royal pain yes, but the hardest part for me is knowing something has to be hurting and he doesn't have the words to tell me or his daddy where, what, or how bad it is. The first 3-4 days wasn't awful, but days 5-7 he would say mommy night night any time we would bring him out of the bedroom. If I left the bedroom he would whimper but was too tired to scream :( Thankfully two rounds of osteopathy and he was on the mend. By Saturday he was back to semi-normal, no temperature and his energy level was around 75%, by today he spent 2 hours at the park with Daddy J (my dad) playing until he was worn out and ready for a nap.
His OT and PT was cancelled last week because he was sick, so when we go this Thursday (it was bumped due to spring break) I am going to have them start working with us on how to get medicine down. I'll work with his speech therapist to see if we can have cards specifically for "being sick". I am glad he talks but the things he talks about, doesn't help us understand him or what his needs are.
WE HAVE A NEW FOOD, he devoured six LARGE strawberries yesterday. He took a look at a fruit and veggie tray and ate every strawberry in the box. Hey I'll take it. I think that's the first new food in six months at least. So MAYBE just maybe we will have another new food in a few days.
I think I have given up the idea of going to Maryland. There are two reasons, one the lady who has a lot of experience with his Klinefelter's isn't a "doctor" She has a Ph. D. in education so the insurance won't pay for it, nor reimburse the $1300 for a visit split over two days. The trip is nearly 10 hours to drive and Dacotah does not do well with, so I'm looking at transferring him from UVA in Charlottesville to UT for the speech, Klinefelter's and autism. He was super sick last week so I'm hoping by the end of May once I graduate college I can turn full attention on finding a new group that can help.
Oh before I forget, we took Dacotah to the local egg hunt. The looks we got for arriving early but we did stay in the vehicle until it's start time. We were asked if we wanted to join the bunny for his walk from the local library down to the park. We declined without giving a reason. But honestly Dacotah would not have tolerated the crowd, the music, or the rabbit. :) So we waited until the split up the age groups and took him out on the field. He and I walked halfway across before I sat him down to find the eggs. He picked a bunch up and put them in his basket, then motioned for me, I told him I couldn't so he continued picking them up and had a lot of fun doing so. It was a lot different as last year he wanted nothing to do with them. Thanks Ryan's Toy Review. It helped a lot.
