Tuesday, August 23, 2016

First day of preschool

in an hour and forty-five minutes our baby will be 2.5 years old. He started preschool today and absolutely loved it! I loved that we didn't cry because we knew he was in excellent hands. Big sister Montana is in the same school and I think it made it easier. Of course with her I didn't cry until I took her for her first day of kindergarten even though it was at the same school! He wanted to go play on the playground first thing but he went inside without any fits! He stayed for three hours and when daddy went to pick him up, he didn't want to leave his teacher or his new friends! We got pictures and videos throughout the morning and I know in my heart we picked the right school for him too. I got a message from his teacher saying if she didn't know anything about him she would have only noticed that his speech wasn't super developed! For his daddy and me that's amazing news to hear, as only a month ago he wasn't interacting or wanting to play. The past month has been amazing.

I still believe in prayer and him sleeping has made a huge difference. We are to the point we are trying a topical medicine to prevent the spitting and pinning him down. Since we are only on night 2, we will see how it goes. We tried crushing the chewables up and hiding them in food but with the sensory issues he finds it in everything we have tried so far. But that's okay. His OT has said she can see a night and day difference in the past month in his interaction, he isn't screaming when we are out so long as we let him walk/run when he needs to. He follows sissy everywhere and she's to the point she says "he plays with me mommy"! I'll take the small steps! By the time he is 5, you won't know he's been behind... As we said one step at a time, he's getting there!

He will have a full evaluation to see if he needs and IEP through the public school system in the next 45 days, it will take effect when he turns 3, my hope is he won't need it. I hope when he goes back to see the developmental specialist she says any signs of autism are gone and he's fine in her opinion. Only time will tell. He won't outgrow the Klinefelters that's in his DNA, quite literally. We are seeing some issues from it:

 His teeth are rapidly decaying (despite him attempting to brush) Klinefelters causes this
 He is very flat footed and OT has suggested we may need to have a PT assessment done to see if he needs braces on his feet. I'm not opposed to it, but I have heard that the braces cause more damage later because it forces the knees and hips out. So we will at least talk to PT and then make a more informed decision.
 We leave for UVA next week for his dental work and his feeding/speech evaluation I'm nervous for both, but maybe the dental issues is causing the lack of sleep, but then it could be from the autism or from something else.


Im not going to worry about it, honestly I know where we have been, I see the small steps and in the words of Evan Rasnick "God's Got This"!

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