Monday, August 15, 2016

The changes continue

The past week has been trial and error. We have not found the best way to get the medicine down and Dacotah has learned to spit it back out. *Bummer* so getting a full dose in him is impossible. But thankfully Anderson's Compounding Pharmacy in Bristol can make a chewable tablet of Visteril. (The drug manufacturer discontinued making Visteril years ago because of the cost. But some compounding pharmacies can make a topical and a chewable). The best part is they can flavor it grape like Benadryl and our hope is that he will chew it up and it wont' be a horrendous fight. Worst cause, we can grind it up and put it on an Oreo because the taste shouldn't be a nasty mint. We will know by Wednesday (HOPEFULLY) if it's going to work like we are hoping.

Dacotah continues to amaze us, it's almost like his brain woke up and he's interacting with everyone. Montana is even more open to playing with him whereas before she quickly became bored because he would ignore her. He works board puzzles and chit chats. we still can't understand everything he says but he is getting better. He added "up, down, and more this week alone" and he is starting to put two words together like "where go" for where did it go.

We took him to the preschool orientation at his school to be, and to start with he walked around in circles around the alphabet rug, then he went in and lined Ms. Monica's cars up. Even though there were other kids there he never got upset and just made him a place to play!!!

He had OT with Mel on Thursday and again it was night and day difference, he is using both hands and interacting very well. We were talking how just a month ago we were wondering if we'd ever get him to talk. We are making strides thanks to the sleep issues getting fixed.

We have his dental work scheduled at UVA on the 31st. Montana will be staying with a friend here in town so she doesn't have to miss school. I dread the trip up because he still doesn't travel the greatest but they can get the x-rays, and do everything needed possibly the same day or the next morning. I'd think it'd be the next morning since it'll be general anesthesia but we should be back home that evening. Please pray everything goes well.

The ride to mamaw and papaw's house on Friday was AWFUL.... it wasn't the worst one but I had loaned our van to my dad for his trip out west and so we had the car with three kids in the back and we left heading West... needless to say the SUN was right on him and he fussed and cried every 15-30 minutes until we could distract him with something just long enough to give us a break.... Sunglasses would be awesome right????? I wish he'd leave them on his head, trust me we have tried. He loves spending time with Mamaw and Papaw, and they love having the kids down to visit. As long as the drive is we still try to visit at least once a month.

Saturday he ate next to nothing, we forgot to pack his chicken fries and so we grabbed a bag at Kroger. He wouldn't touch them, Montana wouldn't eat them..... He wouldn't drink anything and didn't want to nurse either. By Sunday he was back to eating everything in sight. Who knows may have been a off day.

Sunday we all went to church, and I decided to let him stay in the sanctuary until it was time for the sermon to start to see how he would do. He walked up and down, drove his car around, laid on the floor, sat on all of us, and listened to the music. He even went up for Children's church to listen to Ms. Wanda's story, all without having a melt down..... IMPRESSIVE.... I took him back to the nursery with Ms. Anne and he did great with her this time too... See sleep helps.

The ride home wasn't as horrible as the way down. In fact it was 85%  better. We stopped by Putt Putt to see Aunt Marcia and he threw a fit wanting to go out and play putt putt but the weather wasn't so nice.

We got home and he was ready for bedtime around 8, but as I mentioned earlier he's a spitter when it comes to giving him medicine. So he was waking up every 2-3 hours last night, but stayed in his bed, he would yell Mommy mommy mommy, I'd go lay with him and he would go right back to sleep. I'm debating with his growth spurt and weight increase if I need to make him a heavier blanket. Montana has been begging for her own as well, so maybe that'll be my Christmas gift that is homemade.


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